Lord Julian Fellowes visited St Mary’s hospital in Paddington on Thursday 5th July to see for himself the work done to date in the treatment for essential tremor and to learn more about the tremor lifeline appeal. Read the full story on NTF website by clicking this link.
Lord Fellowes has Essential Tremor himself and knows what it’s like to live with the disorder. In fact he finds it more and more difficult to write by hand these days.
Saturday 30th June. Popped down to local park for their annual tea party and games. Found myself unexpectedly chatting to 2 Councillors. Lily (on left) had never heard of Essential Tremor after seeing me try to eat cake. Catherine (on right) explained her grandmother had ET and other family members too. Her grandmother was originally diagnosed with Parkinson’s and after 20yrs on that conditions medication turns out she didn’t have PD but instead Essential Tremor! We had good chat and both agreed to help raise ET awareness in local area. So the motto is I encourage you to go out, don’t hide your tremors but instead talk out about them. You never know you could just help spread the word.
Jackie Farrell (NTF support group coordinator) email@example.com
Thursday 21st June, Imperial Healthcare Charity launch TREMOR LIFELINE APPEAL
The National Tremor Foundation were delighted to be invited to the Imperial Health Charity launch of a £1.5 million fundraising campaign to help develop Guided Focused ultrasound surgery in UK for patients with essential tremor.
Good news! The NHS regulator NICE approved Focused Ultrasound surgery as a treatment in UK 20th June.
Imperial Health Charity has launched TREMOR LIFELINE APPEAL.
Denbies is one of the largest Wine estates in UK. Why not come along and join us for our meetup.
Congratulations and a huge well done to Diane Peternel for completing the Liverpool Rock n Roll half marathon 20/05/18. Diane has Essential Tremor and took part in this event to raise awareness of National Tremor Foundation and ET. We think Diane deserves to look happy on such an amazing achievement of raising Essential Tremor awareness and also supporting National Tremor Foundation.
Congratulations to Alan Corrigan on completing the London marathon 2018 in 05.09.46. Alan has Essential Tremor and took part in the London marathon. Alan entered to raise awareness of National Tremor Foundation who support people with Essential Tremor. It was very tough for him and the weather conditions made it even tougher which didn’t help his tremors. I take my hat off to all participants who took part in the grueling heat making it the hottest London marathon. If anyone wishes to donate to NTF in support of Alans achievement then please go to the virgingivingmoney link which goes directly to NTF. The total has risen to an amazing £1839 including Gift Aid. It would be fantastic to reach £2000. All pounds count so if you can spare just the price of cup of coffee that would be would very much appreciated and welcomed to add to the total. Jackie NTF support group coordinator.
A very productive and busy day at Queen Elizabeth Foundation Kids disability exhibition, Carshalton, The National Tremor Foundation information table was busy with people keen to know about the disorder. They included Occupational therapists interested to know what to look out for regarding ET v PD. General public also stopped by including people who knew someone with Essential tremor. So a very worthwhile day.